The osteosarcoma has returned. It has metasticized to his lymph gland in his right armpit and to his lungs. He has had the tumours removed with surgery. He is now undergoing radiation treatments and chemotherapy. He has a great attitude and he has said that he beat it before he can do it again. He is strong and remaining a child throughout this battle.

Ben has had his first post treatment body scans and he is still NED. NED means No Evidence of Disease. He will be getting scanned and having blood tests every 3 months for 2 years and then it move to every 4 months. Thank you all for supporting Ben and our family throughout this rough journey. Ben is not without side effects, but, they are tolerable and getting better. He is being evaluated for an effect they call "chemo brain" and he has lost some of his hearing in the ranges above normal conversation.   more...The "chemo brain" is presenting itself when he tries to express himself and in his short term memory. We are hoping this will improve and we are also trying to help him develop coping skills.  less

On September 21st our family went to Disney World in Florida to celebrate that Ben is officially NED...No Evidence of Disease...We spent the last 10 days there and it was a great celebration. When we arrived back home I took Ben to the Men's restroom immediately after getting off the plane. As we were walking out of the bathroom Ben turned to me and said, "Am I dreaming or did all of this just happen. I keep blinking, but, I think it really did." I told him him he was right it was all real. He was   more...smiling, laughing and started to skip so I assume he was just talking about the Disney trip.  less

We just came back from a family weekend at a Double H camp weekend for families who have kids affected by cancer and life threatening ilnesses. It was really wonderful. They have a ropes course and Ben conquered his fears and walked on ropes and cables 60 feet up in the trees. It was wonderful to see him and the other children do things they might have thought was beyond their capabilities. I have video and will be putting it together.

Our latest creation is encoding as I type this. We really hope you all enjoy this video. Ben is doing very well. He will be going to clinic tomorrow for more tests and to find out his schedule for a CAT scan, bone scan, and series of x-rays. It seems the hospital is having a tough time with our insurance company. If they are giving us difficulties with the first set of scans after chemotherapy is done I can't wait to find out how they react to our schedule of scans every 3 months.